Orpha Selbsthilfe Forum

Autor Thema: Online Educational Resource for Limb Girdle Muscle Weakness  (Gelesen 589 mal)

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Offline busymouse

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Limb girdle muscle weakness (LGMW) can result from multiple causes. Early and accurate diagnosis is critical to optimal disease management. The diagnosis can involve clinical, electromyogram, and genetic findings. Patient specific multidisciplinary management plans, including genetic counseling, should be developed. Currently, there are drugs available for some conditions. Many providers lack the skills to provide optimal care due to the heterogeneous presentation, complex diagnosis, and rarity of LGMW disorders.

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Nicht die Dinge selbst, sondern nur unsere Vorstellungen über die Dinge machen uns glücklich oder unglücklich.
(Epiktet, griech. Philosoph, 50-138)